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Families of SMA Israel

  • Transparency rating
    (40%)
    Categories of Activities:
  • Health
  • Social Action
  • Social Welfare
  • Rehabilitation
  • Medical

The Families of SMA Israel Association was established in 2002 by parents of newborns and children with the SMA disorder. It started as a self-help association aimed at helping patients with SMA-type muscular dystrophy and their families to cope with

The Families of SMA Israel Association was established in 2002 by parents of newborns and children with the SMA disorder. It started as a self-help association aimed at helping patients with SMA-type muscular dystrophy and their families to cope with the disease and its implications. In 2006 it was registered as a non-profit organization (58-046-120-0), and in 2007 it has expanded its goals and worked to increase public awareness in the medical community and among the general public in order to eradicate the disease and to ensure better treatment for patients. Thanks to the activities of the association, the genetic test for the SMA is now included in the tests subsidized by the government for pregnant women.
Today there are several hundreds of members in the association and it is a member of the international Families of SMA association.
Thanks to its efforts, in cooperation with the Meshi Association, in 2014 a special clinic for children with muscular dystrophy will be opened at t

Certificate of Good Standing
(Nihul Takin)
  
Financial Report (last tax year)   
Certificate of Financial Accounting
(Ishur Nihul Pinkasei Chesbonot)
  
Annual Report (last tax year) - Hebrew   
Certificate of tax-deductibility at source (Ishur Nikui Mas b'Makor)   
Annual Report (last tax year) - English   
Classification as non-profit organization (Sivug Malcar)   
Anticipated Budget (this coming year) - Hebrew   
Non-standard articles of incorporation
(Takanon Meuchad)
  
Anticipated Budget (this coming year) - English