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Smile Rare

חיוך נדיר
580654523
Est. 2017

Smile Rare (חיוך נדיר) is a registered Israeli nonprofit (amuta), registration no. 580654523, based in רחובות, founded in 2017. It holds Section 46 approval, so donations to it are tax-deductible in Israel. It holds a certificate of proper management (Nihul Takin).

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About

Promoting scientific and medical research in Israel and worldwide to assist in developing treatment and partial or full recovery for those with STXBP1 syndrome. Promoting and assisting in technological solutions that provide better treatment for patients with the syndrome and enable quality of life. Finding a cure (through research funding or other means) for the syndrome and/or genetic or other solutions. Increasing awareness among doctors, the paramedical community, the scientific community, and the general public. Creating a knowledge center in Israel on the syndrome to gather the best medical and research knowledge accumulated about it in Israel and worldwide. Assistance and support for STXBP1 patients and their families and organizing all families in Israel with sick members
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Health or life-saving

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