Website upgrading: creating a new site map, collecting and approving content. Creating medical condition summaries for Gorham's disease (a summary document like a medical opinion) for future processes with medical institutions such as the National Insurance Institute, health insurance companies, etc. Defining accessibility and adaptation for Gorham's patients to various spaces and structures. Developing an information kit for families with a baby with Gorham's disease, including matching to support families based on geographic location and community. Establishing a mentor/Big Sister program for Gorham patients
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Community and society