Israeli Association for Promoting Awareness and Treatment of Cornelia de Lange Syndrome (Registered Association)

Help and support for people suffering from Cornelia de Lange syndrome and their family members, promotion and encouragement of research dealing with Cornelia de Lange syndrome and ways to cope with it, dissemination and provision of information to the public in the field of Cornelia de Lange syndrome, promoting awareness of Cornelia de Lange syndrome among the public in Israel